Are you ready for Sept 15th #purplefriday

DG9Y_dDXsAEI8Fa

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#RT @DIYSOS Need Your Help In Swansea in aid of @BBCCiN #charity

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Longnor Breathing Space Clear Up in aid of @StaffsWildlife #charity

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Terminally-ill cancer sufferer draws up bucket list

Please help: Daughters Kaisey and Willow hold a campaign sign supporting a plea for 100,000 signatures on a petition that has triggered a debate in Parliament for their mother (Image: M and Y News Agency)

Jemma was expecting her second child when she was diagnosed with GIST – a rare form of cancer, she needed ten blood transfusions and nearly died. Jemma suffers from a rare form of stomach cancer and is currently taking three drugs to try to prolong her life. She is constantly on chemotherapy drugs, from which she has to have regular breaks, due to the toll it takes on her body.

A gastrointestinal stromal tumour (GIST) is a type of soft tissue sarcoma that develops in the digestive tract. The digestive tract is the hollow tube that runs from the gullet (oesophagus) to the anus (back passage). Most GISTs begin in the stomach or small bowel, but they can develop anywhere along the digestive tract. Research into treatments for GIST is ongoing and advances are being made

The third and most effective drug – regorafenib – costs the NHS around £1,000 a week to provide and has been removed from the health service’s approved list of treatments, yet despite tirelessly trying to campaigned to get the drug successfully reinstated, this hasn’t stopped Jemma, a very remarkable person develop her own bucket list.

Dawn Chandler told Charity UK News:

I am trying to help my niece get some quality time with her kids. Her options in medication are limited, which is why i wanted to do the crowd-funding page for her, because she doesn’t know how much time she has, so is really wanting to do memorable things with her two young girls and hubby. The girls know mummy is not well, but that’s all. It’s very sad.

Jemma who lives with her husband Tony and daughters Kacie and Willow in West Sussex writes about her battle with the NHS on her blog – Kiss For GIST Jemma Peacock

Jemma told The Daily Mail:

The cancer that I have is extremely rare and the research into it is limited so it angers me that they are removing a drug that has been proven to work. I am lucky that I have managed to spend 14 months on the first drug, Imatinib, in the series but I know that it will soon have no effect on my body.

The second drug, Sutan, is not very effective and I know that when I have to be put on it I will have minimal time left. The final drug is the most effective and it is heart breaking they have removed it from the treatment list

Despite feeling poorly a lot of the time, Jemma is determined to do memorable things with her family that they will remember in the future. Jemma has also donated her hair for the Little Princess Trust, for children that have lost their hair through chemotherapy, raised money for the charity.
Dawn added:
Jemma lost her dad to cancer, and so did i, and It seems these days that most families are going to know a family member affected by cancer. Jemma is only 33. I hope her bucket list will go a little way towards lifting their spirits through the tough times.
To donate to Jemma’s Crowdfunding bucket list and read Jemma’s heartbreaking story told by Dawn Chandler – This is me helping in a practical way.

 

Spell your name and do the work out

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Grenfell charity single: ‘I refuse to forget you’

“I refuse to forget you, I refuse to be silenced, I refuse to neglect you…
That could have been my mum’s house or that could have been me up their”

The track is a spin on the Simon and Garfunkel classic track Bridge Over Troubled Water and features more than 50 stars including grime artist Stormzy, Robbie Williams, Celine Dion and Craig David. Paul McCartney, Brian May and Roger Daltrey are also among the vocallists contributing, with other lines sung by Rita Ora, Pixie Lott, Ella Eyre and Paloma Faith. Pianist Tokio Myers, who recently won Britain’s Got Talent, has recorded part of the single, as have Bastille, James Blunt and One Direction members Liam Payne and Louis Tomlinson.

The song is led by choirmaster Gareth Malone, who directs a 300 -strong choir on the single as well as a local community choir, some of whose participants were directly affected by the fire.

It was recorded at west London’s Sarm Studios, half a mile away from the Grenfell Tower site. Simon Cowell has also donated £100,000 to the Grenfell foundation himself.

Rap artist Stomzy has written an introductory verse to the single which features the lines:

“I don’t know where to begin/So I’ll start by saying I refuse to forget you/I refuse to be silenced/I refuse to neglect you”.

Emergency Services Open Day 2017

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